Wednesday, November 21, 2007

Joy

Today marks her 77 days since the stroke and the 50th day at Madonna. I just reviewed the posts from the beginning of her journey and am amazed how Rachel is recovering.

DISCHARGE DATE: NOVEMBER 30

LAUGHTER and JOY

From the beginning, when all looked bleak for Rachel's recovery, we held on to "The Joy of the Lord is your Strength!" These were the first words Rachel heard when she came out of sedation. These words are put to song but what about putting them to life? If you would observe Rachel day in and day out in her room, in therapy or at mealtimes....she is happy and laughing. She is the only patient who smiles and laughs . This makes it so easy for Ryan, the family, the therapists, and the nurses. She is just s delight! Honestly, I have not seen her feel sorry for herself during her time of challenge.
Her tears have been all about WHEN.....WHEN will she be back to normal. When will she be married.

Yesterday we talked about getting married. She wants to be able to walk down the isle and to be able to care or herself first. A noble goal. In light of that, she isn't planning on getting good at the wheel chair or trying to learn to be independent by depending on handicapped facilities. Another noble, thought-out goal of her own. She would rather be assisted or go slow until which time she can do things easily on her own. She wants to mentally work with her body to get it back to full function instead of accommodating its weaknesses. Go girl!

Now for her progress report.

RIGHT ARM
She has much more strength in it......raises it above her head and is eating with it which is amazing! When she grabs something, her fingers now will release when she wants. This is new this week. Before she could grab but not let go....how frustrating!

RIGHT LEG
The shaking in the right leg comes now only when it is very fatigued from therapy. If it starts, she has figured out how to help it stop. She is able to lift her right leg to take normal steps vs. dragging it into the correct position.

WALKING
Yesterday she walked with one therapist and a cane that she barely uses. She is able to walk farther and farther in her 30 minute sessions. She also maneuvered the steps for the 3rd time. Each time she does the steps, she does better than the time before. Her right leg did not shake much during this process.

BATHROOM
She has full function and good control (meaning she can hold it or release it when she goes). Think about how this simple, taken-for-granted function is wonderful when it works and so limiting when it doesn't. PLUS, she doesn't have to spend a lot of mental time trying to coordinate when she drinks liquids, has therapy and will have to go to the bathroom. She is sitting on a regular stool and able to get out of the wheelchair, stand up, turn and sit without assistance....just someone there to 'spot' her in the event of imbalance.

SPEECH
She is speaking much but would like to speak with more volume and definitely wants to sound normal. Currently her voice is low and labored. When her lungs get to full function, this will continue to improve. She talks on the phone to Ryan. The nurses understand her pretty easily although we still must pay close attention when she is talking.

Continue to pray for her knees so they do not lock back when she walks, more strength and pray for planning the date of her wedding.

With Thanksgiving tomorrow, I leave you with this verse:

Nehemiah 8:10 And Nehemiah continued, "GO and CELEBRATE with a feast of rich foods and sweet drinks, and share gifts of food with people who have nothing prepared. This is a sacred day before our Lord. Don't be dejected and sad, for the JOY of the LORD is YOUR STRENGTH."

HAPPY THANKS GIVING!

Bless you all who hold Rachel in your heart and prayers,
Crystal

Saturday, November 17, 2007

Food!

So the big news is that Rachel got upgraded to level 5 foods....which means she can eat and drink anything! She was surprised how easy it was to go from level 3 to 5, but so hard to go from level 1 to 2 and 2 to 3. A couple hours after she was upgraded, she looked at me and said, "That means there isn't anything I can't eat!"

Friday, yesterday, Rachel walked 300 feet in her morning PT session. We are thinking that is twice as far as she had previously walked in the same amount of time. She also did the set of 4 stairs again (it's been a week since last time). The stairs went alot better. Coming down is a bit more challenging than going up.

Today we get to go out for a couple hours. Tonight we are going to go out for supper. Rachel will get to ride in a car and eat 'real' food. We are all excited. It'll be a double date, Rachel and Ryan, and Josh and I.

Yesterday, Rachel attempted to raise her right arm (the weaker one) above her head completely... and this time it went all the way up! Another breakthrough.

Specific prayer requests:
  • Rachel walks out of Madonna unassisted
  • Right leg stops shaking
  • Right thumb, ring and pinky finger gains full function
Have a great weekend!
RuthAnne

Wednesday, November 14, 2007

6 Weeks in Nebraska

Good afternoon,

6 weeks ago Rachel left the hospital in Iowa City. Rachel couldn't talk or move anything but her head and right arm (barely).

I have only been gone for two days and there has been improvement. So fun. Josh and I left Sunday night and I got here this morning around 10am. It's the little things I notice. Rachel can scoot forward in her chair by herself, which takes a good amount of trunk control. When she stands, most of the time she does 98% of the standing herself. Rachel's right arm is continually improving, just slow. But when I left on Sunday, she could not lock and unlock her wheel chair (a cam action) with her right hand/arm. Today, it looks like it's not a big deal, she does it easily. Rachel also did an arm exercise that she had done two weeks ago and got to see huge improvements with her right arm. What was really neat is that Rachel commented that she could see the big improvement. She doesn't usually get to see the big changes like we do because she lives with herself everyday.

As far as we know, Rachel's release date is November 30th. It was originally today, but they extended it. A good thing. 2 1/2 more weeks of therapy in her favor before leaving. A couple of us got okayed to do transfers with Rachel. Transfers are where someone assists in getting Rachel from the bed to the wheelchair or from the wheelchair to the car. Now we can take Rachel out for a couple hours when she has some free time. Yeah! -Starbucks, here we come :-)

Rachel's right leg is also getting stronger. The shaking is still there, but it seems be getting more manageable. She is walking a bit faster and with less effort.
Oh, and when the nurse turned her back on Rachel, she sat up in bed by herself! She used her left hand on her bed railing to help assist. This is definitely a first!

Watching a miracle,
RuthAnne

Saturday, November 10, 2007

Yeah, It's Saturday!

Rachel always looks forward to Saturdays. They work her hard here through the week, and on Saturdays and Sundays, she only has a couple therapies. She is resting today and getting ready for another tough week. Josh and I are here for the weekend and impressed with her continued progress.

On Friday (yesterday) Rachel walked 100 feet with only one person assisting and no rest breaks. Then she walked over to the stairs and climbed up and down 4 stairs. Go girl! Her goal that was set when Rachel got to Madonna was to walk 10 feet with 2 people assisting her. This 100 feet was accomplished at the end of a day at the end of a long week.

Thursday, Speech Therapy, okayed Rachel for level 3 foods and straight water (she's been on level 2 with thickened liquids). Now she can have breads and ground meat. Level 2 was no breads and all soft foods that aren't sticky (like peanut butter).

SOOooo.... this means Rachel's PEG tube came out Thursday afternoon!!! Rachel is one 'happy camper'. She was more than ready to have that tube out of her stomach, it was always getting in the way of her clothes, therapies, and constantly sore. Rachel laughs, because it looks like she has two belly buttons :-)

It sounds like Rachel's treadmill therapist doesn't want to work with Rachel on the treadmill because of the shaking in her leg. So she will be taking the week off from the treadmill.

Rachel specifically is asking for prayer for this shaking that occurs when her ankle is quickly reflexed, mostly in walking. The shaking hinders her walking ability. (and for her knees that wants to lock when she stands or walks).

Check back in a couple hours and I'll be posting a picture.

RuthAnne

Thursday, November 8, 2007

Try This:

Okay, news update. Some of you who can't see the pictures or the addresses probably need to go to www.Microsoft.com and download Internet Explorer 7 or go to www.Mozilla.com and download Firefox. Both are free. I personally recommend Firefox, it works MUCH better than Explorer. After that, you should be able to see all the goodies on the side of this blog just fine. And that will probably help those of you who can't leave posts.

-Josh

Wednesday, November 7, 2007

A Dream

Hello Everyone,

My name is LeAna, I am a good friend of Julia Garrison (Rachel's sister). I recently had a dream that I feel God used to remind me of how important it is to pray for the Garrisons and hope that it reminds you to continue to faithfully lift up Rachel and her family before our Lord!

In my dream, I walked into my kitchen and saw a newspaper lying on the table. I picked it up and started to read, noticing a picture of myself. I started to comment on it when I noticed out of the corner of my eye that my older brother, Evin, was sitting at the table.

Evin lives a few hours away, so I was thrilled to see him and excitedly exclaimed, “Evin!!!” as I gave him a big hug. He let out a little moan as if in pain and slowly, with slurred speech, said something like, “You better stick with the neck hug.” I was confused and pulled back quickly to ask what he meant. He motioned slowly and with much effort to show me that he was in a wheelchair with a headrest and supportive boards in front and behind him to help him sit up. He gave a half smile as if to say, “It’s OK,” but upon realizing the condition he was in, I broke down and wept. I wept to see him in that condition, and also at the realization that I had been so caught up in my own little world, looking at myself in the newspaper, that I had not even noticed him there.

I woke up crying, and continued to cry for a few minutes until I fully realized it was just a dream. Even after realizing this, though, I still had a hard time holding back the tears at just the vivid memory of “seeing” him like that, even if only in a dream.

At this point, I felt that God was putting it strongly on my heart to pray for Rachel, the rest of the Garrison family, and Ryan. It occurred to me that in my dream, I knew in the back of my head that Evin was OK - that he was going to recover. And yet, it absolutely broke my heart to see him in such a state.

I speak to Julia on a nearly daily basis, and am updated frequently on Rachel’s physical progress. I often forget that though she survived against all odds, this doesn’t mean that it’s an easy road from here on out. I’m sure that there are days for her when she is terribly discouraged, and days that it hurts Ryan and her family to see her so changed.

So as we continue to praise God for the incredible progress that Rachel has made thus far, let’s not forget to implore Him to give strength, joy, and hope anew each day to the Garrisons and Ryan.

“May the grace of the Lord Jesus Christ, and the love of God, and the fellowship of the Holy Spirit be with you all." -2 Corinthians 13:14

LeAna Negron, New Jersey


Mom writes from Lincoln:

Rachel just asked me to put on the blog to pray for
-her walking on the treadmill every Tuesday and Thursday mornings (10:30am CST)
-her legs would be coordinated with God's help vs. pharmaceutical intervention
-that the spasms in her legs will disappear (they show up with exertion and fatigue)

Rachel's right side has good muscle tone.
The therapists say Rachel is one of the hardest working, determined patients they have seen.
We are all pleased with her progress, even though the list of things she can do without assistance is short, but growing!
Therapy is a very long, laborious road for all involved.
Prayers have been answered in abundance! In light of that, let me ask you.... would you consider praying for a touch-from-God miracle?

-Crystal

Isaiah 45:18,19 "I am the Lord," he says, "and there is no other I
I publicly proclaim bold promises. I do not whisper obscurities in some dark corner. I would not have told the people of Israel to seek me if I could not be found. I, the Lord speak only what is true and declare only what is right."